Official Debra Ambassador
I am really excited to share the news with you that I have officially been appointed as an Ambassador for Debra Australia.
Debra Australia is the not for profit national body that supports everyone living with Epidermolysis Bullosa (My genetic skin condition.)
E.B is “The Worst Disease you have never heard of”
I have lived with E.B my entire life and 100% believe that catch cry to be true. Every word of it.
Living with E.B is a life long torturous condition. It effects every single part of your life for every single second of your life.
At Debra we support all the families and everyone living with E.B. We support research and trails but in my opinion the biggest and most important aspect of what we do at Debra is support all the individuals living with E.B and all the families in their day to day life and however we can. Whatever they need we try to help them out to make their life better in any way possible.
Check out www.debra.org.au for more information and I am absolutely thrilled to be an Official Ambassador for Debra and to help continue to grow to be bigger and better than ever before.