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Today is world rare disease day. I have lived with a very rare disease my entire life. Living with a rare disease is hard. But if you ask me the hardest part isn’t actually living with a rare disease. The … Continue reading →
Well 2013 has well and truly kicking off in an interesting way. Some challenges to over come as always and some great things as well. One such great thing happened just last weekend (January 27th to be exact). I … Continue reading →
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